Canary In A Coal Mine film needs our help!
Please watch this amazing video (you’ll be inspired, I swear – there are cameos by Dr. Enlander and Dr. Klimas), share the link and support the project, if you can. There’s only 27 days to go. Help...
View ArticleAward Season
While I was down and out for those few weeks, dealing with the world spinning out of control and increased pain and flu symptoms ~ and the sadness that comes along with it all ~ I was nominated for...
View ArticleDIETS Part I: gluten-free, allergy, autoimmune/anti-inflammatory, classic...
My mother told me recently that she only gave me soy milk for a long time as a child after my allergy testing showed I was allergic to half of the things on this planet. This is when I was 3. I’ve...
View ArticleIV Saline Experiment
My doctor finally acquiesced to my pleas to try IV saline and see if it helped my symptoms at all. I really wanted to try it last month when I was going through such hell after the tilt table test (I...
View ArticleBest Endocrinologist Ever.
Every time I have an appointment with my endocrinologist, I hem and haw about whether I should cancel it. It’s on the other side of town, $50 round-trip in an Uber, it only ever lasts about 20 minutes...
View ArticleInserting my own peripheral IV catheter.
I guess I should say: Warning: Graphic medical procedure! When I was learning to insert an IV, I couldn’t find many decent tutorials online (I was only allowed one nurse visit to walk me through it and...
View ArticleFirst 911 call since being sick.
We had to call an ambulance this morning for — are you ready for this unbelievable fact? — THE FIRST TIME SINCE I’VE BEEN SICK (absolutely sick and disabled by M.E.; I was fully functional with MCAS...
View ArticleIn Amber
A DECADE A decade since I felt well. A decade since my body and health were not on my mind. A decade since my last cold, flu or bronchitis. A decade since my last vaccination. A decade since I enjoyed...
View ArticleMany symptoms. Many tests.
I’m going to start with the last things first: In the next month, I am having a colonoscopy under anesthesia, a fluoroscopic barium defecography, an anorectal manometry, an ACTH (Cortrosyn) stimulation...
View ArticleDamn Your Eyes
A note about my eye exam today: I need to update my blog more often — for myself, more than anyone else. This morning, I had my first eye exam in 7 years and I looked back here to see if I’d said...
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